When Matthew was a baby (before he was
diagnosed with agenesis of the corpus
callosum) the doctor wrote in his chart
notes that he was "floppy." I didn't
discover this until I made the choice to
change pediatricians and I got a copy of
Matthew's chart notes. I later learned
that "floppy" also means low tone.
Then Matthew was diagnosed with ACC when
he was four months old via a CT scan.
Matthew was very low tone as a baby and
toddler and a little guy. He had very
little strength in his muscles to do
what most little babies and toddlers
can easily do.
I can remember wondering if Matthew would
ever gain more strength in his muscles and
I worried that he may struggle with
low tone without significant improvement.
When I would change his diapers at an
age where most babies would wiggle and
squirm and struggle to get away, Matthew
would move only a little bit and I could
easily keep him where I needed him to be
because he didn't have the strength to
As I was sitting at the computer today
that once little guy (who will always be
little in my eyes) stood next to me and
I was playing a tickle game with him. I
reached out both of my arms at him with
wiggly tickle fingers and began to sing
a silly song about "Now I'm gonna tic..."
and those two little boy hands grabbed my
own arms and prevented me from tickling
him while he was laughing at our little
He is already stronger than me and definitely
is no longer that "floppy" and low tone
little guy I once worried about.
Now it's the other way around. I feel like
a little girl up against my own very sweet
and super silly BIG boy.